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notacares

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First posted: 1 month
Type: Registered user
Full name: NOTA Cares
Location: New York
Website: https://notacares.org/
About:

​NOTA Cares is a global nonprofit organization dedicated to supporting individuals and families affected by Tyrosinemia—a rare genetic metabolic disorder. Originating from a Facebook group, it has evolved into a worldwide community offering resources on diagnosis, treatment, and dietary management. Through advocacy, education, and events like the NOTA Experience, NOTA Cares fosters connection, empowers patients, and promotes early detection and comprehensive care.​

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